Diagnosed with rare lifelong disease, narcolepsy. Best recourse for tactfully managing command team?

2016-07-15T12:58:35-04:00

To be brief.
I've been diagnosed with extremely severe narcolepsy. Sleep attacks, hallucinations (rem intrusions), excessive daytime fatigue, and the ever funny Cataplexy.Meds I need that work Tricare won't pay for and I've been on conleave until I'm balanced. Yet today I find out my commander spoke to a provider i've never met who said he'd change my profile and remove conleave.(More info below

Response by SGT Private RallyPoint Member made Jul 15 at 2016 1:01 PM

2016-07-15T13:01:07-04:00

I'd recommend using your NCO support channel, letting your squad leader know what's going on, and see if there's anything that they can do. Based off of their response, you may need to go higher, but jumping your chain of command even when your CO pulls something like this is the wrong answer. If recommend getting your primary care in on this too, and whatever specialists you've seen, because they're the ones who will make any medical decisions for you.

Response by SPC Private RallyPoint Member made Jul 15 at 2016 1:02 PM

2016-07-15T13:02:35-04:00

Essentially with the diagnoses Ive accepted my desires of going for the full run of 20 are over.MEB is already inniated and I can't drive. Frustrated with a command team that has already given me UCMJ for the disease and now won't just let me walk out the door.

So what would be my best options in handling an issue like this while attempting to maintain the rank i've earned until the I can the end.