Does anyone have a spouse with MS (Multiple Sclerosis)?

2019-07-19T20:53:30-04:00

I'm just looking for others that are in a similar situation and how they manage everything at home and work.

Response by Capt Daniel Goodman made Jul 19 at 2019 8:57 PM

2019-07-19T20:57:57-04:00

https://search.aol.com/aol/search?q=multiple%20sclerosis%20support%20groups&s_it=loki-tb-sb

You might find these useful....

multiple%20sclerosis%20support%20groups - AOL Search Results

Download A List Of Questions You Can Ask Your Neurologist About Multiple Sclerosis. Sign Up To Receive More Information On How You Can Be Proactive About Brain Preservation.

Response by Capt Daniel Goodman made Jul 19 at 2019 8:58 PM

2019-07-19T20:58:47-04:00

https://www.nationalmssociety.org/Resources-Support/Find-Support/Join-a-Local-Support-Group

This looks esp good, though, of course, that search I'd sent also had numerous others, as well, obv....

Join-a-Local-Support-Group

Response by SFC Private RallyPoint Member made Jul 19 at 2019 10:40 PM

2019-07-19T22:40:42-04:00

I’m currently at ft Bragg my spouse has MS . I just got a compassionate reassignment where are you station.

Response by SFC Melvin Brandenburg made Jul 19 at 2019 11:20 PM

2019-07-19T23:20:30-04:00

I wish you the best

Response by MAJ Ron Peery made Jul 20 at 2019 9:01 AM

2019-07-20T09:01:56-04:00

No. I had an aunt who had it. I took care of my parents for several years when they were both suffering from dementia. Not the same disease, but the challenges would be the same. Let me know if I can help.

Response by SSgt Private RallyPoint Member made Jul 20 at 2019 9:24 AM

2019-07-20T09:24:38-04:00

SPC Golembieski, I have MS. The Air Force retired me in 2002 when I got diagnosed.
I'm sorry for you and your wife. It's a bitch of a disease. Message me on RP if you need to.

Response by Lt Col Jim Coe made Jul 20 at 2019 1:43 PM

2019-07-20T13:43:34-04:00

Yes, my wife was diagnosed with MS in 1974 while we were stationed at Langley AFB. (Before MRIs were invented.) Fortunately, we were stationed at Scott AFB in the late 1970s and she was accepted into a study program at Barnes-Jewish hospital and Washington University School of Medicine. TRICARE cooperated with the research and we paid very little expense for the experimental treatment. Treatment included removal of an abnormal thymus gland and treatment with post-operative drugs. She did amazingly well. The rapid advance of the MS was dramatically slowed. Within a year she was "normal." We continued in the USAF with assignments to Alaska, Florida, and back to Scott AFB. I retired in 1991. She completed her BSN in 1999 at Barnes School of Nursing. The Doctor who had led the research always stopped her in the hall when he happened to see her at Barnes, gave her a hug, and told her she was his miracle patient. She was the only one in the research study with such great improvement. Dr. Trotter passed away a few years ago.

It was sometimes difficult to balance military and personal life. Fortunately, she was able to care for herself throughout my military career and did a great job of raising our three children. She didn't become physically disabled until I had been retired from the AF for over 10 years. Again a blessing.
If your spouse's MS progresses rapidly, with fewer and shorter remissions, then you will need home assistance to keep your military career going. The assistance may be minor at first, such as somebody to come in and clean the house weekly. We used the Base Child Care Center quite a bit until the kids were old enough to care for themselves if Mom had a bad day--or week--while I was at work. Living on the military installation is a big plus. Your commute to work is short, emergency return hove takes little time, and the military medical facility may be close. As the disease progresses, you may need in-home health care during the time you are not at home. This can be expensive. I'm not sure if TRICARE will cover any of this cost. Look into it. (I retired from my very good civil service job in 2013 to take care of my wife full-time.) Relatives may be able to help if you need to go TDY or be deployed. Plan ahead!

Also, find the best neurologist you can within reasonable distance of where you live. I see you may be in Hawaii. The military medical facility there may have a neurologist. Hopefully, he or she can care for your spouse, but might also refer you to somebody "downtown." Check with the Universities' medical schools to see if they run an MS clinic or are doing MS research. Make sure your neurologist orders MRIs of the head and spine to keep track of any damage MS is doing. Also link up with the local MS Society chapter. They may provide education for you both, sources of assistance, and references to clinics and specialists. There have been many advances in treatment of MS, so the therapies my wife underwent probably aren't used any more. And, there may be a cure within your lifetime as we learn more and more about autoimmune diseases. Pray.

Always let you supervisors and commander know your spouse has a debilitating disease. Know enough to explain MS and how it effects you spouse. They will be a lot more understanding if they have advance notice that a personal emergency can happen. Do your part by having plans in place to provide care for your spouse and children if necessary while you are TDY or deployed. Learn how to work through the Red Cross if you are deployed and must make an emergency return home due to your wife's health. Also, know how the compassionate reassignment system works, so you can use it in the future if needed.

Consider changing to an MOS that offers opportunities for "desk jobs." Many of these types of jobs are in combat service and combat service support areas. Having a job where you are "home for dinner every night" is a big plus with a partially disabled spouse. I did that for 7 years and it was a big help in raising the kids.

Finally, hang in there. Be prepared to become a full-time caregiver at some point in your life. My prayers go with you both.

Response by SSgt Richard Kensinger made Jul 20 at 2019 6:50 PM

2019-07-20T18:50:53-04:00

In my clinical experience I've encountered two subtypes: persisting and protracted and the alternating expression of remission and relapse. It is a protracted disease. Look it up on "Medscape" for additional clinical information.
Best, Rich

Response by SPC Herold Bush made Aug 4 at 2019 11:33 AM

2019-08-04T11:33:55-04:00

Yes , my spouse was dianogesed about 6 years ago.

Response by SFC Robert Mercantini made Aug 5 at 2019 12:32 PM

2019-08-05T12:32:25-04:00

I found out I had ms in 04. I hid it from my command because I pcsed soon after. Deployed still. Jumped out of planes. Fought in amateur mma. It affects everyone different. As I progressed in age and with the disease... I developed chronic bronchitis, diverticulitis because of the meds I’m on. Among other symptoms. Live life like it’s your last day on earth.

Response by SPC Kendall Metcalf made Aug 10 at 2019 11:37 AM

2019-08-10T11:37:23-04:00

I have a sister with many health problems, she is married to a Navy man. Stationed in Japan For the most part. She would get a second opinion using tricare on big issues, other than that she has lived as House hold 6 as normal as any other wife. ( side note She has MS and had Cancer)

Response by SrA Private RallyPoint Member made Jan 3 at 2020 12:46 AM

2020-01-03T00:46:15-05:00

After bouts with many neurologists I was diagnosed of MULTIPLE SCLEROSIS, I was placed on medications which helped but my health was fast declining. Finally, I was introduced to Herbal HealthPoint and their effective Multiple Sclerosis protocol. This protocol relieved symptoms significantly, even better than the medications I was given. Visit ww w. herbalhealthpoint. c om. First month on treatment, my tremors mysterious stopped, had improvement walking. After I completed the treatment, all symptoms were gone. I live a more productive life.

Response by SrA Private RallyPoint Member made Jan 3 at 2020 12:46 AM

2020-01-03T00:46:22-05:00

Response by Amn Private RallyPoint Member made Jan 23 at 2020 12:04 AM

2020-01-23T00:04:03-05:00

45 years old female with very aggressive Multiple Sclerosis that does stand up comedy. Ms has negatively impacted my life in so many ways, but I gotta say that it has made me stronger and a better person in a lot of ways. I feel so happy and excited to see myself recover from MS very fast. I can talk very well and walk freely now. Here is herbal centre that helped me recover incase you need their help (besthealthherbalcentre. c om).

Response by Amn Private RallyPoint Member made Mar 22 at 2020 8:45 PM

2020-03-22T20:45:35-04:00

After an MRI i was diagnosed of MULTIPLE SCLEROSIS. After years on medications, symptoms worsened with tremors on my right hand, numbness and tingling, muscle weakness and loss of speech. Fortunately last year, i learnt about RICH HERBAL GARDENS and their Multiple Sclerosis alternative treatment (ww w. richherberbalgardens. com), the Multiple Sclerosis treatment made a great difference, most of my symptoms including tremors, weakness and others gradually disappeared. I improved greatly over the 4 months treatment, its been a year since the treatment, i have no symptoms. I have a very good quality of life and a great family!

Response by Amn Private RallyPoint Member made Mar 22 at 2020 8:45 PM

2020-03-22T20:45:44-04:00

Response by Amn Private RallyPoint Member made Mar 27 at 2020 7:11 AM

2020-03-27T07:11:43-04:00

After an MRI i was diagnosed of MULTIPLE SCLEROSIS. After years on medications, symptoms worsened with tremors on my right hand, numbness and tingling, muscle weakness and loss of speech. Fortunately last year, I learnt about Rich Herbal Gardens (ww w. richherbalgardens. c om) and their effective MS Formula treatment through an MS support group on facebook the Multiple Sclerosis treatment made a great difference, most of my symptoms including balance, weakness, falling alot and others gradually disappeared. I improved greatly over the 4 months treatment, its been a year since the treatment, i have no symptoms. I have a very good quality of life and a great family!

Response by Amn Private RallyPoint Member made Mar 27 at 2020 7:12 AM

2020-03-27T07:12:02-04:00

After an MRI i was diagnosed of MULTIPLE SCLEROSIS. After years on medications, symptoms worsened with tremors on my right hand, numbness and tingling, muscle weakness and loss of speech. Fortunately last year, I learnt about Rich Herbal Gardens (ww w. richherbalgardens. c om) and their effective MS Formula treatment through an MS support group on facebook the Multiple Sclerosis treatment made a great difference, most of my symptoms including balance, weakness, falling alot and others gradually disappeared. I improved greatly over the 4 months treatment, its been a year since the treatment, i have no symptoms. I have a very good quality of life and a great family!

Response by A1C Private RallyPoint Member made Aug 8 at 2020 10:04 PM

2020-08-08T22:04:39-04:00

I was diagnosed with multiple sclerosis in 2014 but had my first symptoms in 2012. both my legs were spasming mostly at night which made sleeping difficult. I tried Copaxone for about 5 years or so. The Copaxone causes joint pain, I have tried several types of medications but all made me sick. In 2019 I went to a care facility, life was too difficult at home for my husband and family. I was advised by one of the nurse at the care facility to try natural treatments, She introduced me to Mayaka Herbal Clinic, spoke to my husband about it and he went online to research, My husband read lots of positive reviews from other people who used the product from Mayaka Clinic, We decided to start me on the treatment. Its been 7 months since I completed the treatment, It has made a tremendous difference for me. all my symptoms including poor vision, pain, fatigue, and other symptoms stopped Visit RICH HERBAL GARDENS website ww w . richherbalgardens .com

Response by MIDN 3/C Private RallyPoint Member made Oct 26 at 2020 10:13 AM

2020-10-26T10:13:32-04:00

I was diagnosed with Multiple Sclerosis (MS) in October 2011, at the age of 44. I woke up one morning with numbness in my lower back and legs, I couldn't feel my feet touching the floor. I saw my doctor and had an MRI to see if I had a disc problem, it was negative and she told me she feared MS. I was sent to a neurologist, had two more MRIs, and was told that night that I have four lesions on my spine MS. I tried every shots available but nothing worked. In 2015, my neurologist and I decided to go with natural treatment and was introduced to Mayaka Natural Clinic natural organic MS Herbal formula, i had a total decline of symptoms with this treatment, the numbness, terrible back pains, stiffness, body weakness, double vision, depression and others has subsided. Visit Mayaka Natural Clinic official website http://www. mayakanaturalclinic. com This treatment is a breakthrough for all suffering from Multiple sclerosis, i am strong again!

www.

Response by Audrey Holloway made Nov 9 at 2021 4:53 PM

2021-11-09T16:53:05-05:00

Hi,
I'm not sure if you're still on here, but I'm a spouse. I just got diagnosed. We are supposed to PCS to Geilenkirchen in February, and I'm trying to find out if this diagnosis is going to mess that up. Needing advice asap. Anyone else PCS'ed to Germany with a spouse with MS?

Response by PFC Private RallyPoint Member made Nov 19 at 2022 3:50 PM

2022-11-19T15:50:47-05:00

After an MRI i was diagnosed of MULTIPLE SCLEROSIS. After years on medications, symptoms worsened with tremors on my right hand, numbness and tingling, muscle weakness and loss of speech. Fortunately last year, i learnt about Health Herbs Clinic and their Multiple Sclerosis alternative treatment ( ww w. healthherbsclinic. com ), the Multiple Sclerosis treatment made a great difference, most of my symptoms including tremors, weakness and others gradually disappeared. I improved greatly over the 6 months treatment, its been a years since the treatment, i have no symptoms. I have a very good quality of life and a supportive family!